Caregiving in the US 2025 Report: Downloads

The Caregiving in the US 2025 report is based on the repeated, cross-sectional Caregiving in the US survey begun in 1997. Since 2004 the survey has been fielded every five years with a new sample of family caregivers.

The survey is designed to estimate the prevalence of family caregiving for adults or children with disabilities or serious medical conditions in the US and to describe the characteristics, roles, and needs of family caregivers. For the purposes of this survey, family caregiving is defined as providing ongoing supports and management of complex care tasks for children and adults with chronic, disabling, or serious health conditions.

This survey was fielded with adults ages 18 and older using Ipsos’ national, probability-based online KnowledgePanel as well as an opt-in sample. The final sample includes 6,858 completed surveys: 5,106 from KnowledgePanel® and 1,752 opt-in respondents.

This report draws from a nationally representative online survey completed by 6,858 family caregivers ages 18 and older. This study defines family caregivers as adults providing ongoing care over the past year to adults or children with complex medical conditions or disabilities. In addition, family caregivers have a pre-existing relationship with the care recipient they support, such as a family member (e.g., spouse, parent), friend, or neighbor.

Most family caregivers are not paid for the care they provide. In this study, these are unpaid family caregivers. In limited circumstances, certain Medicaid self-direction or VA caregiver programs provide payments to family caregivers. We consider those receiving payment to be paid family caregivers. Paid family caregivers are not equivalent to professional direct care workers though they may perform similar care tasks.

Throughout this report, arrows or carets in tables indicate statistically significant differences at the 95 percent confidence level. When comparing more than two groups, superscripts show which specific comparisons are statistically significant. All results—including averages, medians, and percentages—have been weighted for accuracy.